Tuesday, July 1, 2008

BMT is Scheduled

Sarah's PICC line did not need to be removed. Thanks for all your prayers on this. We were so relieved that it could stay and be her means of access for blood work since there is no pain involved. The PICC line will need to be replaced soon with a Broviac central line. The Broviac is a longer term replacement for the PICC. The Broviac replacement is scheduled for Monday, 7/14. Sarah will be anesthetized for the replacement.

We made it to the meeting with the folks at Dana Farber today. It was a long day and filled with lots of questions and answers. Johnny, Betsy and Sarah all had blood drawn today for testing to choose which of the two will be the donor. Sarah is scheduled to be admitted on Friday, 7/18. We learned about what to expect during and after the BMT.

Some key learning's from today's visit:
1. Sarah will be in the hospital for 4-6 weeks and visiting 2-3 times a week after release.
2. Sarah will be vomiting a lot (up to 3 weeks) after radiation ends and be treated for pain (mostly from mouth sores) with morphine.
3. Sarah will be allowed up to 3 healthy visitors in her room at any given time throughout her stay.
4. Sarah will not likely have any cognitive impairment from the radiation, but will likely be infertile.
5. After Sarah returns from transplant, she can not be in public places (restaurants, libraries, stores, church, etc.), but she can go outside (yard, hiking, etc.) for 6 - 9 months.
6. After Sarah returns from transplant, only immediate family members are allowed to be inside the home for 6 - 9 months.
7. The doctor said Sarah's biggest post transplant risks were from other people and poop. There are other things we should be careful about, but these are the biggest.

I will not list the multitude of other things discussed or the update would never end today.

It is difficult to take all this "one day at a time" and Susan and I are challenged to keep our stress in check. Please pray that Sarah will continue to respond well to her different treatment types and overcome her cancer.
-Psalm 119:74-76

1 comment:

Anonymous said...

I do not know how I am to pray for this child
as a mother I don’t want my baby denied
but in the waiting in the waiting
I learned

Every instinct in me wants to shield him from pain
take the arrows of misery heartache and blame
but in the sorrow in the sorrow
I learned to hold on

I only have two eyes - be all seeing
I only have two hands - be everywhere
I do not know enough - to be all knowing
I give this baby up into your care

I do not know how, how to pray for this child
I want to guard him from everything wicked and wild
but in the trial in the trial
I learned to hold on
And in the trial, in the trial
I learned to hold on to the heart of God

-Sarah Groves