Friday, January 16, 2009

Sarah is doing great. She is playing quite energetically with her siblings, laughing, pretending, asking lots of 4 year old questions, and quite normally fighting like crazy with Christopher. And I am loving every minute of it. Every minute.

Yesterday one of Sarah's doctors called to let us know about the latest pcr-abl and this one, you might want to sit down, was not negative. This one showed .15% of the cells had the PH+ genetic mutation. Not the news we we're hoping for. We we're praying for a negative. But still we are grateful it was a low number. Only problem with that number is that that bone marrow was taken two weeks ago for testing. Which means we don't know what her marrow looks like today. Deep sigh. Just one more opportunity to "Trust in the Lord with all your heart" Proverbs 3:5

Since Sarah's marrow has shown some very small signs of recovery, her platelets are trending upward and can I say at a snails pace, it is time to continue with the chemo. We now have a plan for next week. Sarah will be admitted into Chad on Monday for a dose of Dasatinib and some close observation by the Docs. That's all. We'll see how it goes and what happens. Hopefully she won't have any of the neurological issues this time.

I am not sure if I'll have Sarah duty by myself at the hospital or not. Ben is running out of his Medical Family Leave Act time and he kinda needs to save it for Sarah's second BMT. We'll see how God works it out.