Saturday, June 7, 2008

It's Good to be Home

Sarah came home Thursday. We brought her in the door and laid her sick little body on the couch. She was quiet for a while and then it started. The smiling, laughing, and then talking. Our sweet little girl came back to us and the transformation was remarkable. While in the hospital Sarah was extremely quiet and withdrawn. She would go through an entire day and say only a sentence or two. Never responding to the doctors and nurses and often not even her mom and dad. Home and family have been good medicine for her.

We take her back to the hospital on Wednesday for another spinal tap and bone marrow aspiration to determine if she is ready for the next step in her treatment. We are hoping that after next Wednesday we will be told it's time to transfer her care to Boston to prepare for the transplant. But of course we have no idea how soon that will or will not happen.

She has had a little vacation from all her medicines in order to give her body a chance to recover some white blood cells and the special neutrophils she needs to fight infection. While we were glad she didn't need to take any drugs, the withdrawal from the prednisone has given her terrible pains in her legs. So much so that she doesn't want to move around nor even walk to the bathroom herself. Tomorrow we'll be trying Tylenol with codeine.


Anonymous said...

Dear Jones Family,
My heart goes out to you, as you and Sarah battle her leukemia.

Please know that you are in the thoughts and prayers of many and will continue to be.

May God give you the strength you need to get through this difficult time and hold Sarah in his hands as she continues her fight.

In christian love,
Regina Erdly

Anonymous said...

Jones Family:

I hope Sarah continues to do well.
May God be with Sarah and your family. May God also be with the physicians and staff that are attending to her.

Gayle Collins