Sarah has been doing really good since she was released from the hospital this past Thursday. She has had a lot of energy and is only taking a couple of drugs and getting one shot in her leg every day at home. She is not eating great, but she is eating and drinking enough.
Yesterday we went to get ice cream at our favorite family ice cream shop. It was outside and they never have a crowd. Fortunately for us, no one else came the entire time we were there. The video of Sarah and Christopher shoveling is at the ice cream shop. We decided to go all out this weekend and met with the small group we fellowship with on Sunday afternoon. It was good to meet with them and chat afterwards. It has been a while since we've done that and after the BMT, we will not be able to meet for quite some time I think.
We hope to recieve a call from the folks at Dana Farber tomorrow and arrange for our first meeting with the BMT team. I did a little more research on BMT facilities tonight and I'm still pretty happy with Boston Childrens Hospital. Not much else to report on. It was a pretty normal weekend with my family.
Sunday, June 22, 2008
Posted by jonesteam at 10:52 PM