Saturday, May 31, 2008

Day 26 - Back in the Hospital

We're back in the hospital. Sarah developed a fever of ~101.5F midday Thursday, so back to the hospital we went.

Sarah's team of doctors told us the fever and the approximate stage of treatment she developed the fever was not unexpected. They also said we should expect Sarah to be in the hospital for a couple of weeks. To be able to leave the hospital, Sarah's neutrophil count will need to rise to >500. Susan and I have worked out a schedule for who stays with Sarah at the hospital and when. When I say schedule, I mean something we wrote on the whiteboard. We are learning a new meaning for the words scheduling, planning and routine.

Sarah is doing pretty good today with no fever and she enjoyed a nice visit with her brother Michael this afternoon. She was animated, smiled and talked some. She's not like that much anymore so it felt good to see. Her hair is starting to fall out more heavily now and she is getting a little heavy from the steroids.

Sarah's next scheduled chemo treatment is next Tuesday. The doctors will be analyzing her bone marrow and determining if she has reached remission then too. The three possible outcomes from next Tuesday are:
1. Remission - Sarah comes off chemo for a while before radiation/BMT.
2. Close to remission - Sarah stays on her current chemotherapy recipe for a little longer then reaches remission.
3. Not close to remission - Sarah begins a new more aggressive chemotherapy regimen with possibly uglier side effects.

We'd really appreciate your praying for outcome #1 above. I must say God is making us nervous, but we are still with him because we know he is with us.
-Deuteronomy 20:1-4


Anonymous said...

Dear Ben and Susan,

I am sorry to hear that Sarah is back in the hospital. Please know that you are all in our prayers!
May Yahweh continue to give you the strength that you all need through this time and draw you ever closer to Himself.

With Love always,
Is. 41:10

Anonymous said...

Dearest Jones Family:
I am sorry to hear about your precious little angel. She will be a stronger person for having to go through this. I know how you are feeling right now, as my daughter had a blood disease at the age of 8 months and it was the hardest time I have ever had to face. I would have traded myself to put in her place. The out come was very positive and she is a healthy 13 year old girl now.
I am praying for your strength and for your daughters recovery. He is with you and He loves you dearly. Lay within His love and feel it surround you. I know times are confusing now but know He loves you and your family.

With Love and Prayers,
Julie MacLean

Anonymous said...

Ben and Susan,

Ella and I and many, many friends and church members here in Alabama are praying for Sarah. We all hope and pray for outcome #1 for Sarah next week. Love, Ruth and Ella

Anonymous said...

Dear Ben and Susan,

I pray that this finds you with immense peace in your hearts! I found out about Sarah through Samantha LaGoy and have been praying for all of you since. I have first hand experience w/a child battling cancer and will do whatever I can to help you!!

Hold TIGHTLY to God's unchanging hand as He keeps you in the palm of His hand. He'll never give you more than you can bear.

In His Service,
Ginny in KY

~~~~But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

~~~~Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.

Peter said...

We are praying daily for Sarah and for your whole family as you go through this. We trust God will continue to give you strength and wisdom.

Cindy Denio